ACTIVE STUDIES
We promote, develop, and encourage research that acknowledges a full appreciation of sexuality and relationships among women, partners, and couples living with HIV around the world.
Interested in participating in research? See below for ongoing studies.
Have a study to add to this directory? Email us at info@lifeandlovewithhiv.ca
Location: THE WHOLE WIDE WORLD! :)
Aim: To hear directly from at least 1 million women and girls worldwide about how they define quality maternal and reproductive healthcare.
Eligibility: All self-identified women and girls.
What they ask from you is: To complete this statement: "My one request for quality reproductive and maternal healthcare services is..."
What you get in return is: The satisfaction of contributing to research for change! There is no payment for this study.
Link to access online survey: https://www.whatwomenwant.org/english (Available in 13 languages.)
Other information:
- Enrolment Dates: 2018
- Lead Institution(s): The White Ribbon Alliance
- Contact: Visit their website's contact page.
- Website: https://www.whatwomenwant.org
Location: United Kingdom
Aim: To understand how women experience, struggle, cope and thrive with HIV and how they see their HIV status interacting with other areas of their lives that are important for their general wellbeing
Eligibility: Self-identified women living with HIV who are currently living in the UK.
What they ask from you is: To complete a 30-40 minute online self-administered questionnaire, exploring a range of topics including sex and sexuality.
What you get in return is: The satisfaction of contributing to research for change! There is no payment for this study.
Link to access online survey: https://www.surveymonkey.co.uk/r/thtsfexperience
Other information:
- Enrolment Dates: Launched November 2, 2017 (active and recruiting new participants)
- Lead Institution(s): Sophia Forum and Terrence Higgins Trust (THT)
- Contact: Laura, research [at] tht.org.uk
- Website: https://sophiaforum.net/index.php/2017/05/17/women-and-hiv-new-joint-research-project-with-tht/
Location: Canada (British Columbia, Ontario, and Saskatchewan)
Aim: To understand the ups and downs of relationships where one partner is HIV-positive and the other is HIV-negative.
Eligibility: Live in Canada, are 18 years of age, speak English or French, have disclosed your status to your HIV-negative partner, and are either currently in a relationship or were in a relationship in the past 2 years, where one partner is HIV-positive and the other is HIV-negative and the relationship lasted 3 months or longer.
What they ask from you is: To complete an online self-administered survey of approximately 30 minutes.
What you get in return is: A $20 CAD gift card to Tim Hortons, Canadian Tire, Walmart, Subway Restaurants, or President’s Choice – Loblaw Ltd. Stores.
Link to access online survey: https://www.demographix.com/surveys/DWKA-HRCZ/LTBXR4L4/?web
Other information:
- Enrolment Dates: 2016 to 2018
- Lead Institution(s): University or Toronto
- Contact: info [at] PositivePlusOne.ca, 1-888-740-1166
- Website: www.positiveplusone.ca
Location: Canada (British Columbia, Ontario, and Saskatchewan)
Aim: To learn about how the criminalization of not disclosing one’s HIV status may impact women’s lives, sexual wellbeing and relationships, and interactions with health and social service professionals.
Eligibility: Self-identified woman (inclusive of cis, trans, and gender diverse women), living with HIV, 18 years of age or older, and residing in British Columbia, Ontario, or Saskatchewan.
What they ask from you is: To participate in a 4-day (9-hours each day) arts-based workshop called Body Mapping with up to 8 other women living with HIV.
What you get in return is: $200 CAD for completing the 4-day workshop.
Link to access online survey: Not applicable.
Other information:
- Enrolment Dates: 2016 to 2017
- Lead Institution(s): McMaster University, Simon Fraser University
- Contact: Allison Ion (Project Coordinator), iona [at] mcmaster.ca. Rebecca Gormley (Project Coordinator), rgormley [at] cfenet.ubc.ca, 1-855-506-8615.
- Website: https://socialsciences.mcmaster.ca/watch-hiv
Location: Canada (British Columbia, Ontario, or Québec)
Aim: To assess women's access to healthcare including use of women-centred HIV care, and the effect of such use on sexual and reproductive health outcomes.
Eligibility: Self-identified woman (inclusive of cis, trans, and gender diverse women), living with HIV, 16 years of age or older, and residing in British Columbia, Ontario, or Québec.
What they ask from you is: To complete a 2-hour online questionnaire administered by a peer (a woman with HIV), covering demographics, health care utilization, and various aspects of women's health including sexual health and relationships.
What you get in return is: $50 CAD for completing each survey.
Link to access online survey: Not applicable. (Provided at time of interview.)
Other information:
- Enrolment Dates: 2015 to 2019 (wave 3 of data collection on-going; cohort only open to those enrolled in wave 1)
- Lead Institution(s): Women’s College Hospital, McGill University, Simon Fraser University, BC Centre for Excellence in HIV/AIDS
- Contact: In BC, Rebecca Gormley (Project Coordinator), rgormley [at] cfenet.ubc.ca, 1-855-506-8615. In ON, Mina Kazemi, mina.kazemi [at] wchospital.ca, 416-351-3800 ext: 2741. In QC: Karéne Proulx-Boucher, chiwos.quebec [at] gmail.com (QC), 514-934-1934 ext: 32146.
- Website: www.chiwos.ca